word of the day is LAZY

I am just so lazy lately.  I haven't made it to they Y in 2 weeks.  I don't feel like doing anything except sit on the couch or lay in bed and watch tv.  I want to be a bear so I can hibernate for the winter.  Every year it is more and more clear to me that I need to move to a place where the winters are milder.  Mackenzie graduates this year and John and I have talked in the past about moving somewhere warmer after that.  Now it is so close and it doesn't seem as realistic.  I know Mackenzie wouldn't want to leave Michigan...........this is where she has always lived, her dad lives here, her friends are all here.  So it would be hard to leave her.  Then there is the matter of our house.  We have so many home projects/repairs that would need to be done around here before it could ever sell.  That unfortunately takes money and talent that neither John nor I have right now.  Maybe this year we can make steps toward improving all that and our house.  I have always wanted to move somewhere that I just love and make that my forever home and Michigan just doesn't feel like home to me even though I have lived here now since I was almost 17.  And life is too short right?

Nothing too exciting to report around here.  Like I said I have been feeling lazy.  The boys are tired of being cooped up inside.  They have been kind of hyper and silly and I feel like they are watching too much tv lately.  Jack has really gotten into PBS sprout online.  It is really a neat website and I think he does learn a lot from it and it has the extra bonus of making him feel more independent and being good with his fine motor skills because he is using the mouse and navigating the page by himself.  (wow, how was that for run-on sentence?)  Yesterday we took them to a place called Playworld that has all of this inflated stuff to play on and the balls and hamster tubes.  They had a great time and Jack was braver then I have ever seen him.  He is always kind of afraid of heights because of his balance issues but by the time we left he was climbing up the stairs and sliding down the big slide.  He also bounced a little bit in the bounce house.  I wish I had some pictures but the video I took was really dark.  It looked like a bad b movie so it isn't worth posting here. 



We are supposed to get hit with a bunch of snow tonight and tomorrow so even though tomorrow is February it doesn't seem like there is an end in sight to this winter.  This morning Jack and I waited outside for his bus for 15 minutes freezing our tushies off.  He was in major meltdown mode because he wanted no part of school today and he wanted his jammies back on and he wanted his boots off and and and.  But he made me laugh because he was so mad at me and he kept saying "stop being a naughty girl, mommy!"



All right, I am going to go back to being lazy now while Charley is busy with Legos and Jack is at school.(probably being a sweetheart for his teachers and saving his tantrums for me.)

So that cute kid in the picture? He was the weird kid at the birthday party yesterday. Has anyone else just had their heart broken while watching their kid in a social setting?

My friend's son had his 5th birthday party and I took Jack alone. John's dad is here from Texas so instead of dragging everyone they just had some alone time with Charley. For the most part Jack was fine playing with this leapfrog alphabet thingy. All the other kids were running outside and playing on the playset. When Jack did go out there a boy yelled at him and at one point pushed him. I guess even at this young age kids can sense when someone is different from them. And Jack doesn't help things.........in group settings is quirks come out in force. He likes attention so he will do his little skippy dance and when someone asks him a question he will answer in a gibberish made up language. I wish he wouldn't do that. He is such a sweet kid and people in these situations only see his quirks. We knows he has CP but I wish we knew why he did some of his other things. He doesn't fit on the autism spectrum. Maybe I shouldn't worry so much because on the way home last night he kept saying to me, "I had fun, Mommy." So it sounds like I am the one with the hangups and I need to just let him be Jack.

On another note, here is his latest funny


Jack~ Mommy will you flip me in the water?

Me~ Not right now honey.

Jack~ hey! use your manners say yes!

So using your manners means saying yes. funny boy

Jack

My 4 year old Jack had to have a 24 hr video EEG on Monday.

We had a regular 1 hour EEG last summer that came back with some rare activity on it. Still not quite sure what that means........but I was told that it was okay and that the Doctor didn't feel that we needed to do anything at this time. Kind of a wait, watch, and see. Well, I helped out at Jack's school a couple of weeks ago and both his teacher and occupational therapist (Jack has very mild CP) told me that they are still seeing some episodes during the day that could be seizures. Basically he is staring off for a few. Who knows if he is just tired,bored,overwhelmed. I didn't really want to put him through a 24 hr test where he would have wires hooked to his head and have to be confined to a small room if it is nothing..........but once the idea is put into your mind that your kid could be having seizures, well, I guess you have to find out.

It will take a couple of weeks to get the full report back but I learned something on Monday from Jack. He is way more brave and resilient that I give him credit for. He was so well behaved and seemed to understand that he needed to stay put on the "magic bed" (named so because of it's ability to move up and down :) without me even needing to remind or tell him. He thought it was pretty cool that his meals were delivered to him on a tray.

The whole experience was a hundred times better than I hoped. Now I just hope we get good test results for my little trooper.

note~ His test came back negative for seizures :)