Tuesday, November 13, 2012

roller coaster worry

On Mondays I work at Jack's school library for a few hours in the morning.  On those days we get there a little bit later than normal because I try to get all librarian cute instead of my normal yoga pants and hoodie look that I normally carry off so well.  This didn't go so well in Jack's mind yesterday.  He didn't realize that by the time we got there the bell would have already rang and it was time to head to class.  No play time outside.  That did not set well with Mr. Jack man.  He got really whiny with me in the hallway and told me how mean I was and that I had ruined his day.  And judging by the super crushed look on his face I probably did. So, I calmed him down as best as I could and sent him into the classroom not really knowing how his behavior was going to continue.

So flash forward a few minutes.  I am all happy checking in books and organizing them on their shelves and is so simple and mindless and allows me to not really have to think for a few minutes of my day.  But that was cut short as the office called into the room and I was sent to the office.  It wasn't so bad they just wanted to set up an appointment with me to go over our last screening we did on Jack and maybe see what is next.  The bummer thing is that for some odd reason they can ONLY meet on Tuesday mornings.  And guess who works at her real job every single Tuesday?  This girl.  So right away, anxiety about not being able to be at this meeting.  John will go instead and relay info to me as he remembers it.  He better remember it all word for word and tell me 800 times every time I ask so what did she say about that again?  Poor guy.  But no, Stacy the school psychologist is going to call me this week so that we can go over everything and she can help me move forward with a plan.  For now we are fairly confident that he has ADD.  So we will be able to talk to his pediatrician about meds that might help for that. So, you start feeling better like.... ok this isn't the end of the world.  We can so handle ADD we will rock it so hard it will make everyone want their kid to have ADD and mild CP.  But wait!  That is not all... also want to do more screenings to see if he has some other componets going on  that may
 be related to his CP.  I think they want us to pursue a neuro psych eval.  Which I am not even sure what all that entails. Or who we get it started with.  And I was at work when all of this important meeting was going on and I was missing it.  John did call at one point and put me on speaker phone.  They said not to worry.  She will guide me through what I need to do and she said she would call me later this week too so that she can catch up (and hear me cry) and we can over all of their findings on him and what she things we should be doing. 

I know I mentioned before how great all of these people are that are working for my son.  I just feel so blessed with them helping us and him get through this.  The school psychologist actually has a son named Jack who has cp and is more cognitively impaired than John.  So I think she pretty much understands all of this and my emotions. 


So now I just have fill out another questionnaire and wait for the results of that and wait for Stacy to fax all of her other finding to our pediatrician so we can get that ball rolling for meds for ADD.  And then just wait and see where we go with the neuro psych stuff.  Which scares me the most but I guess I won't really know what that is all about until she calls me.  So, I guess I just need to love on the little boy I have right now and know that we are on a great path of finding out what is best for him. A Jack plan.  We want school to be good and I never want him to come home on Friday and tell me school is evil again.  

Sorry this was kind of all rambly.  I worked all day and worried my head off about all of this.  Just had to get it out I guess.

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